- In May 2023, Shriners Children's Hospital in the U.S. announced the expansion of its multidisciplinary arthrogryposis program, integrating advanced surgical planning tools, 3D-printing for custom orthotic devices, and telehealth platforms to enhance access and continuity of care. This initiative reflects the growing emphasis on patient-centered, technology-driven solutions in rare congenital conditions and reinforces Shriners’ role as a global leader in pediatric orthopedic care
- In April 2023, Great Ormond Street Hospital (GOSH), U.K., launched a collaborative clinical research program focused on the genetic profiling of arthrogryposis multiplex congenita (AMC). Partnering with European rare disease consortia, the initiative aims to identify genotype-phenotype correlations that can guide personalized treatment strategies and inform early diagnostic protocols, marking a critical advancement in arthrogryposis precision medicine
- In March 2023, Nemours Children’s Health, a leading pediatric health system in the U.S., piloted a virtual rehabilitation platform specifically for children with arthrogryposis. The platform provides remote access to tailored physical and occupational therapy programs, offering an innovative solution to geographic and mobility barriers. This reflects a broader trend of integrating digital health technologies into long-term management of congenital musculoskeletal disorders
- In February 2023, AIIMS Delhi (India) launched a national awareness and early detection campaign targeting congenital conditions, including arthrogryposis, in collaboration with pediatric orthopedic societies. The program focuses on improving frontline healthcare provider education, expanding screening in rural areas, and encouraging early referral to specialist centers—addressing a critical gap in early intervention within developing regions
- In January 2023, Boston Children’s Hospital introduced robotic-assisted surgery into its arthrogryposis treatment portfolio, enhancing precision in joint contracture release procedures. This cutting-edge integration of robotics into pediatric orthopedics represents a significant step forward in reducing surgical risks, shortening recovery times, and improving long-term functional outcomes for children affected by severe joint limitations
